Friday, 30 April 2010

Off and running.....

I cannot believe it has been so long since I last posted. Sorry. Morphine is not my friend.

I am on the trial!
I am on the trial drug!

Officially started last Thursday. Friday I was dancing almost totally pain free. Absolutely ecstatic. Saturday I was in hell. Lower than a snake's belly. It seems that my tender little stomach is taking some extra time to get used to the drug. I think I have experienced the full gamut of listed side effects. This is probably not good for the trial stats and every second day they talk of taking me off the medication, but I am being uncharacteristically assertive. I can do this. My stomach will rise to this occasion (hopefully not literally - again).

This whole trial process has been a roller coaster. The baseline studies have been scary. Latest scans show 'spots' on my lungs and a couple of 'specks' on my brain.

Thursday, 1 April 2010


Yay I have a mutant fast growing cancer gene!!

Its not much I know but its a start at least. This means that I am eligible for the drug trial. I have an appointment next Friday to have all the testing done again at the cancer hospital - I imagine this will be the baseline info for the trial. It will be interesting to see how much Terry The Tumour has grown since Feb.

As you can tell from my last post - I have good days and not-so-good days. The pain meds make me feel dizzy and nauseous and don't seem to block much of the pain, but the next step up are morphine based meds which would mean I couldn't look after Kayla. I decided that if I was only going to be here for a short time then I wanted to 'be here' as much as possible. Probably not so good for DH who has to do so much more around the house, but hopefully not for much longer.

A lovely reader sent me a link to a New York Times article about the drug I hope to trial and they talked about almost instant reductions in tumour size, so hopefully I can get some of my life back soon. Another lovely reader emailed me some info on other drugs in the works so I'm planning on sticking around long enough to try all these new things.

Thanks to everyone still thinking of me and praying for me. I really do appreciate it.