Friday, 30 April 2010

Off and running.....

I cannot believe it has been so long since I last posted. Sorry. Morphine is not my friend.

I am on the trial!
I am on the trial drug!

Officially started last Thursday. Friday I was dancing almost totally pain free. Absolutely ecstatic. Saturday I was in hell. Lower than a snake's belly. It seems that my tender little stomach is taking some extra time to get used to the drug. I think I have experienced the full gamut of listed side effects. This is probably not good for the trial stats and every second day they talk of taking me off the medication, but I am being uncharacteristically assertive. I can do this. My stomach will rise to this occasion (hopefully not literally - again).

This whole trial process has been a roller coaster. The baseline studies have been scary. Latest scans show 'spots' on my lungs and a couple of 'specks' on my brain.

25 comments:

edenland said...

I'm here, thinking of you and sending you love love love. Your tough tummy can do it. I know it can.

Peace to you, sweeetheart XOXOXOX

PS What can I do? Like, literally actually DO. If there's anything, anything at all ... please email me. XOX

Melanie said...

Keep fighting. Fight this damn thing and win. I'm pulling for you with everything I've got. Truly.

Sue said...

I work in oncology clinical trials, so I know how hard this must be on you. Hang in there and fight the good fight.

Lisa said...

Thinking of you often. Sending prayers, hugs, and strength for this fight.

battynurse said...

Thinking of you and sending many good hopeful thoughts that you achieve some good results from the trial and that your stomach holds in there.

Stacie said...

I am here sending strength, good thoughts, and calm tummy vibes your way. Come on stomach!

I continue to keep you in my daily thoughts. Love and hugs.

OHN said...

Can you ask them if there is something they could give you to counteract the stomach stuff? I know that here, we have what is called a "GI cocktail" that helps with stomach upset.

Sending good thoughts from the state of Ohio :)

Noelle said...

So glad to see a post from you. Sending lots of prayers (and wishes for a Zofran prescription for your tummy!) your way.

I also recently chose you for a Beautiful Blogger Award: http://featheredbythemoonlight.blogspot.com/2010/04/if-youre-beautiful-and-you-know-it-clap.html

jungletwins said...

So glad you're on the trial. Thinking of you.

Flying Monkeys said...

I'm glad you're in the trial. Is there anything you can eat or drink while taking the med that might help with the tummy woes? I'm sure you've tried everything you can already, I hope your tummy toughens up soon the the s/e's resolve.
I saw OHN mentioned the GI cocktail, see if you can use that, it works wonders.
Sending positive thoughts your way!

Anonymous said...

I am so glad to hear you are on the trial! You can do this. You can do this.
Wishing you everything good.
Kirsten

Wordgirl said...

My dear friend,

I think of you and Kayla ALL the time! I am thrilled to hear you're on the trial drug -- and, like everyone's wishes here, hope you've found something to ease the nausea. I said to Eden once that I wished we could sit cross-legged on the floor drinking coffee (or tea) and talking -- sun spilling onto the floor -- and I'll send that wish along to you too -- I know we'd have so much to talk about.

Sending so much love to you,

XO

Pam

SassyCupcakes said...

That's awesome news about the trial. You can totally do this. I know you can. *hug*

Anonymous said...

Thinking about you. Hoping things are improving; that the trial is good to you.

Stacie said...

It has been a while, but I've been thinking about you lots. I just wanted to stop by and say I am sending love your way. I do hope that you are kicking some serious cancer ass right now.

Hugs.

Pundelina said...

I've been thinking about you and hoping that you got on the trial - wonderful news.

((hugs)), I hope the side effects abate soon.

edenland said...

Thinking of you. Sending you some love love love. Hope that sweet baby of yours is going well. And of course you too. Hope those stepkids are falling over themselves to help whenever they can.

XOX

Anonymous said...

Been thinking about you with the news coverage on a melanoma drug success. Hoping for the best.
Kirsten

Lisa said...
This comment has been removed by the author.
SassyCupcakes said...

How are you? I've been thinking about you. Take care.

AussieJenn said...

You continue to be in my thoughts. I do hope the trial is working for you.

Pundelina said...

I was thinking about you as I feel asleep last night - hope you are ok.

Lisa said...

Thinking of you.

Anonymous said...

Thinking of you. I hope to hear an update with good news soon.

Kold_Kadavr_flatliner said...

God bless you profusely, girl. Meet me in Heaven.