Thursday, 18 February 2010


DH and I are overwhelmed my your love and support. DH has tried many times but not been able to read all your comments, so moved by the kindness of strangers.

A huge thank you to my gorgeous bloggy mates Eden, Stacie and Mrs Mask for recruiting extra prayers. We are going to need all the help we can get for this new fight.

My uncle visited today. His 40yo stepson was diagnosed late last year with Stage 4 cancer of the rectum with spots on the liver as well. He's been having chemo for about a month now and the main tumor has reduced from 75mm (same size as my lymph node tumor) to less than 7mm and the liver spots have dramatically reduced as well.

We have been crying every day but we have hope. Hope has always and will always be with us.

I am just anxious to start treatment and get the fight on.

Saturday, 13 February 2010

And it just keeps getting better

The past few days have been horrid.

I had surgery on Thursday to remove some suspect skin lesions. One on my back, one on my thigh and another on the sole of my foot. All pathology came back as benign. Obviously the one on my foot has me laid up for a few days. My parents are here again but this time has really bothered me because I am an invalid. Kayla has a cold and has been crying a lot more than usual, and I can't get up to her, I can't carry her and I can't bath her. I hate it so much. It seems too much like a window to the future....

The Professor finally made contact about my latest scan results. The cancer has spread to my bones - it's in my shoulder, thigh, hip, pelvis and I think a few spots in my back. He said my prognosis is not good - about 8-9 months - but they are trialling a new drug which seems to have some promise. I'm not sure what this means but I will try anything, do anything to gain even just a little more time with my precious family.

My heart is breaking for DH. Imagine what it would be like to be told the person you love may only live another 9 months (unfortunately at least a couple of you know this feeling already and that breaks my heart too.). We haven't told anyone else yet and I don't know if we will. I have so many thoughts and feelings running rampant in my head but truly don't know what else to say right now....

Friday, 5 February 2010

Liver Spots

I thought liver spots were those brown marks old people get on the backs of their hands. A CT scan yesterday revealed spots on my liver. Not good news apparently. According to the report the lymph nodes in my groin are also enlarged but the Dr did not mention this. Good news is that there is no sign of cancer in my lungs or brain. Possibly something sinister hanging out near my left kidney but other organs look good.

The breast surgeon has been awesome. Since the diagnosis I have spoken to her or her secretary every day. She has organised an absolute barrage of tests for this week and even an appointment with one of the Melanoma experts at the local cancer hospital for today. So hopefully they will move just as quickly and aggressively with treatment.

On a much lighter note.... Kayla had her half birthday yesterday. She is just so happy and gorgeous and is loving spending all this extra time with Grandma and Grandpa.

Tuesday, 2 February 2010

Cancer Schmancer

Hello. My name is Louise.

I have cancer.


Fuck it.

I noticed some swelling in my armpit about 3 weeks ago but didn't think much of it. I knew I had a breast screen appointment on January 27th so I thought I'd mention it then. By then it felt like a hard lump, maybe a bit smaller than a golf ball. The breast specialist scheduled another ultrasound and a needle biopsy of my lymph nodes for February 9th. Two days later the lymph node(s) was the size of a tennis ball and a huge lump had appeared under my collar bone. I rang the specialist again and she did the needle biopsy herself yesterday morning. The results came back as "Atypical", so I had a core biopsy yesterday afternoon to get a bigger tissue sample. She rang with the results today. Cancer. Melanoma. The pathologist checked twice.

We don't have a lot of information yet, but par for the course with me there is a kicker. The kicker is that the cancer in my lymph nodes is a secondary cancer and we don't know where the primary cancer is. And therefore how advanced it is.

I am booked in for some scary bloody radioactive body scan on Friday to help find the sucker. Then hopefully next week I will have surgery again to cut it out and remove the lymph nodes.

I can't get the image of ugly black cancer cells multiplying in my armpit out of my head.

The speed at which this thing appeared scares the fuck out of me.

The fact that I have a six month old daughter scares the fuck out of me.

I want to be there when she gets married, I want to be there when she has a baby of her own.

Infertility kicked my arse but did not beat me. Cancer will not beat me.