Thursday, 1 April 2010

Start

Yay I have a mutant fast growing cancer gene!!

Its not much I know but its a start at least. This means that I am eligible for the drug trial. I have an appointment next Friday to have all the testing done again at the cancer hospital - I imagine this will be the baseline info for the trial. It will be interesting to see how much Terry The Tumour has grown since Feb.

As you can tell from my last post - I have good days and not-so-good days. The pain meds make me feel dizzy and nauseous and don't seem to block much of the pain, but the next step up are morphine based meds which would mean I couldn't look after Kayla. I decided that if I was only going to be here for a short time then I wanted to 'be here' as much as possible. Probably not so good for DH who has to do so much more around the house, but hopefully not for much longer.

A lovely reader sent me a link to a New York Times article about the drug I hope to trial and they talked about almost instant reductions in tumour size, so hopefully I can get some of my life back soon. Another lovely reader emailed me some info on other drugs in the works so I'm planning on sticking around long enough to try all these new things.

Thanks to everyone still thinking of me and praying for me. I really do appreciate it.

13 comments:

Wordgirl said...

Oh Louise,

I can't tell you how much I think of you. So much. You're my comrade-in-arms stepmother -- you've helped me through so much -- I hope you know that I am here thinking of you and Kayla and Rose (right?) your husband and stepson....

Writing always helps me. I hope you find you can come to this space and know we're holding you up.

SO happy to hear about your acceptance into the trial!

XOXO

Love,

Pam

jungletwins said...

Thinking of you, hoping and praying you get the good results you so deserve.

Noelle said...

So glad you have updated. Thinking of you and sending hope your way!

In Due Time said...

Praying for you. I try to read every day to see how you're doing.

Glenda said...

So pleased and so praying the treatment works. You are an astounding, amazing woman. I do not understand why you have been through and still seem to have to go through so much, all I know is that your grace and strength in incredible adversity is truly inspirational (although I so wish you never had to be inspiration, how much better for you and your loved ones if you just had a simple easy life).

I pray for you daily and look so forward to your healing.

sassy said...

I am thinking of you and your family.

SassyCupcakes said...

I'm so glad you're eligible for the trial. I'll be thinking of you on Friday. I'm so sorry the meds are messing you up and not doing enough. I get wanting to avoid morphine though, T-Rex's nanna has been taking it for months and she's not the same person she was.

For what it's worth, I had a friend who died of cancer, I know weed really helped her at different times when other things stopped working. I don't know if it's an option for you, but I know she used to smoke it before bed so she could sleep without being woken up by the pain.

Wordgirl said...

HI you.

Just saying hello and letting you know I"m thinking of you and Kayla , your DH, your stepkids -- everyday.


XO

Pam

Lisa said...

Praying the drug gives you some relief. Will be sending you positive energy for your day of testing Friday.

Bridgwest said...

Wow, it's not too often you read that first sentence anywhere!!

Good luck with giving your mutant fast growing cancer gene a fair kick up the arse.

Sending you all the cyber strength I can muster.

Bridg

Anonymous said...

Oh good! Wishing and hoping for that trial for you. And so glad that the NYT article was helpful. There really is true hope!

AussieJenn said...

You continue to be in my thoughts...

Anonymous said...

Just thinking about you and hoping you got into the trial.